A moving memoir from the mother of a child with Treacher Collins Syndrome, with a foreword by R.J. Palacio, author of Wonder

For Magda Newman, normal was a goal—she wanted her son Nathaniel to be able to play on the playground, swim at the beach, enjoy the moments of childhood that are often taken for granted. But Nathaniel’s severe Treacher Collins syndrome—a craniofacial condition—meant that other concerns came first. Could he eat without the aid of a gastrointestinal tube? Could he hear? Would he ever be able to breathe effortlessly?
 
In this moving memoir, Newman, with the help of her son, tells the story of raising Nathaniel, from the shock she and her husband faced when he was born, to the inspiration of Nathaniel’s own strength and quirky humor. All this while also facing both non-Hodgkins and Hodgkins lymphoma diagnoses of her own. This uplifting story of a family tackling complex and terrifying circumstances with love and resilience is a true testament to Magda and her family, and to families everywhere who quietly but courageously persist.
 

Praised by R.J. Palacio as “wondrous”—this moving memoir follows a teenage boy with TC syndrome and his exceptional family from diagnosis at birth to now.

“This touching memoir is a must-read for anyone who wants to know more about the real-world experiences of a child with craniofacial differences and his extraordinary family. It’s also more than that. It’s a story about the love between a mother and a son, a child and his family, and the breadth of friends, helpers, and doctors that step in when the unexpected happens. It’s a story that will make young readers reevaluate the word ‘normal’—not only as it applies to others, but to themselves. Any book that can do that is pretty wondrous, as far as I’m concerned.” —R.J. Palacio, author of Wonder

In this uplifting and humorous memoir brimming with black-and-white comic illustrations, Nathaniel and his mother, Magda, tell the story of his growing up with the same craniofacial syndrome as the boy from Wonder—from facing sixty-seven surgeries before the age of fifteen, to making friends, moving across the country, and persevering through hardships. How they tackle extraordinary circumstances with love and resilience is a true testament to Nathaniel and Magda’s extraordinary family, and to families everywhere who quietly but courageously persist.