To the world’s public health authorities, Covid-19 would either be a deadly disease for some, or it would be a simple respiratory illness for most-cleared up in a couple of weeks.
But then tens of millions around the world got sick and stayed sick. With scientists and doctors caught off guard, these patients often found solace only in themselves, organizing support groups across continents while ill in bed. An innovative band of patients researched the disease themselves, flipping the script and illustrating a new paradigm for research. In these unprecedented times, the CDC and the WHO came to them.
Covid “long haulers” found their new illness wasn’t so new. It resembled a number of post-viral syndromes, hard to treat and neglected by science for decades. CNN journalist Ryan Prior weaves in his own life, the stories of activist patients, and the latest science into a captivating tale of regular people crying out for care that actually works. The stakes are high: As Covid continues to circulate, its long-term effects could grow as well, weighing on the health system for decades to come. But getting Long Covid treatments right could help revolutionize care for all complex, chronic illness.